I'm sorry I've been not available for a few weeks. My mom became increasingly unable to eat her food properly over the last few months, and as we hit September, started to refuse food or drinks of all kinds. This was not unexpected as her Huntington's Disease progressed, but it really threw me emotionally when her nursing home confirmed we were at that point.
Around two weeks ago, I was asked if I wanted to consider a feeding tube for her, and given that she had known this was a possibility and made her opinion on the matter VERY clear, I said "No."
I was able to use her Neurocare Unit room as a hospice of sorts, as we settled in for 7 days of her refusing food and fluids, and only saying yes to medication for her pain. She was very focused and peaceful through most of it. It was obviously a very difficult time, but I am honored to have been able to fulfill the promise I made to give her a comfortable death with family at her side when she chooses to let her life be done. My mother passed away last Friday at 11:35 pm, at the age of 66. My journey with her had many highs and lows, but my love had no limits.
I can't believe September has crept up on us already! I went on a road trip with my husband and my best friend a few weeks ago. The car ride was 10 hours long. I can't drive anymore, so hubby has to do all of it. I had to put many pillows around and behind me, and also ban air conditioning in the car unless the internal temperature was over 75 because it hurts so much when the cold air blows directly on my body. I enjoyed the trip and visiting with my friends. I hadn't seen them much at all since Covid started because it's often not safe and they don't put me at risk just for a visit.
Sometimes I'm amazed that my husband has stuck with me for so long given the fact that he would happily live in a refrigerator and I would happily live at over 80 degrees all the time. We make it work by having separate bedrooms. It's very important when you are "thermostatically incompatible" like we are.
https://www.goodnewsnetwork.org/top-20-things-that-make-people-feel-good-and-new-positivity-bench-in-london/
https://www.joincake.com/blog/dementia-blogs/#h_61158529121595272153152
Consider following one of these blogs about dementia or Alzheimer's, whether you're living with it or are caring for someone else.
https://trans-resources.info/
A directory of resources for trans, non-binary, and gender non-conforming people
https://psychcentral.com/health/active-meditation#who-can-benefit
Active meditation — or meditation on the move — can help you get in touch with the present moment throughout your day. Here's how.
https://arstechnica.com/gadgets/2023/07/samsung-makes-the-galaxy-z-fold-5-and-z-flip-5-official/
Samsung has a new fold-flat hinge, gives the Z flip a bigger screen.
https://www.news-medical.net/health/Working-Towards-Earlier-Diagnosis-of-Multiple-Sclerosis.aspx
Getting an early diagnosis for multiple sclerosis (MS) is important in ensuring better long-term outcomes and quality of life.
https://www.psycom.net/get-help-mental-health
If the mod team sees that you are posting about plans or actually planning a banner that says "Join Lemmy" or something similar, that is fine. If you are posting about an effort that is more along the lines of "Fuck Spez" or a giant penis with a Fediverse logo, we will remove the posts or comments. You can't plan that here. Lemmy.world admins do not want us over there making the Fediverse look bad on Reddit, and today is no exception.
It's fine to post funny pictures of what people on Reddit have already done, but we won't be planning anything like that here.
@ZenGrammy
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